Kelly Family Fundraiser Raises Over $37,000 for CPIRF
Recently, one family and its supporters made a great impact on the future of cerebral palsy research on behalf of its youngest family member, 8-year-old Finn Kelly. The Sleepy Hollow Half-Marathon on March 23 was the location for the first annual “Find a Cure for Finn” Fundraiser, spearheaded by Finn’s oldest siblings, 17-year-old Dillon and 15-year-old Tatum [...]
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“Shooting” for a Cure
Elena Delle Donne, former All American star basketball player from the University of Delaware and current member of the WNBA professional women’s basketball team, Chicago Sky, is spreading the word with CPIRF about an NIH-funded study for children ages 2 to 12 with spastic cerebral palsy by Dr. Christopher M. Modlesky of the University of [...]
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Board Member Is Key Contributor To Columbia Business School Case on Disability Market
CPIRF board member Rich Donovan, CEO of Fifth Quadrant Analytics, NYC, is a key contributor to a pioneering business school case study profiling the disability market for Columbia Business School, Donovan’s alma mater. His schooling, business acumen, and Donovan’s personal experience as an individual with Cerebral Palsy, have made him a world-renowned expert in the [...]
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CPIRF Saddened by the passing of former Goldenson Awardee Dr. Jacquelin Perry
The cerebral palsy and rehabilitation therapy community lost one of its most revered and influential individuals with the passing of Dr. Jacquelin Perry at the age of 94 on Monday, March 11, 2013. Dr. Perry was one of the early pioneers and champions of gait research and a past recipient of CPIRF’s Isabelle and Leonard [...]
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CPIRF Installs Three New Board Members
At the Foundation’s January 24, 2013 meeting, CPIRF installed three new board members, Eric J. Hespenheide, James Paul Volcker and Jean-Louis Lelogeais. According to Board Chairman Bill Richards, “all three individuals were voted in by unanimous decision, and we are delighted to welcome them to our organization.” Glenn Tringali, president and CEO of CPIRF added, “Eric, [...]
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CPIRF Research Presentation Highlights
Highlights from the January 24, 2013 Board meeting Research Summary Presentation to new and returning board members were “numerous and enlightening,” according to new Board Chairman Bill Richards, himself a father of a grown son with CP. The presentation covered where the field of CP and CPIRF research has been, where it is now, and [...]
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Longtime Leaders of CPIRF Honored With Award Designations
At the January 24, 2013 CPIRF board meeting, a formal resolution was passed establishing that the first two research grants awarded annually by the Foundation, in the amount of $50,000 each, will be separately named in honor of James C. Stearns and Dr. Murray Goldstein, for their 20 years of leadership with CPIRF. According to [...]
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CPIRF SAC Chairman Co-authors New Book on Cerebral Palsy
Dr. Peter Rosenbaum, Scientific Advisory Council (SAC) Chairman for CPIRF, has co-authored a new book, Cerebral Palsy: From Diagnosis to Adult Life with Dr. Lewis Rosenbloom. This 224-page paperback is dedicated to family members and caretakers of children with cerebral palsy, as well as adults with CP, doctors and therapists. Cerebral Palsy: From Diagnosis to Adult [...]
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Teens Raise Thousands For Cerebral Palsy Research
Never underestimate the power of four single-minded 13-year olds, especially when it involves two sets of brothers. The efforts of four students from Lake Mary Preparatory School in Lake Mary, FL, resulted in a donation of $3,800 each to the Cerebral Palsy International Research Foundation and United Cerebral Palsy of Central Florida. Theo Juliano and [...]
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Benefit Honoring Paul Volcker Nets Over 3/4 of a Million Dollars for CP Research
Benefit Honoree, Former CPIRF Chairman Paul A. Volcker Paul A. Volcker, former Chairman of the Economic Recovery Advisory Board under President Obama and prior Chairman of the Federal Reserve under Presidents Carter and Reagan was honored for his many years of service to CPIRF at a gala benefit which netted $779,000 for further research and [...]
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CPIRF Installs Three New Board Members
21 February 2013
At the Foundation’s January 24, 2013 meeting, CPIRF installed three new board members, Eric J. Hespenheide, James Paul Volcker and Jean-Louis Lelogeais. According to Board Chairman Bill Richards, “all three individuals were voted in by unanimous decision, and we are delighted to welcome them to our organization.” Glenn Tringali, president and CEO of CPIRF added, “Eric, [...]
Posted in Featured Stories, Foundation NewsComments (0)
Board Member Profile: Michael Hausman
21 May 2013
“The CPIRF Board of Directors is comprised of some of the most fascinating, caring and accomplished individuals who happen to either have cerebral palsy(CP), have a family member with CP or have learned about our organization from someone in the former or latter categories,” said CPIRF CEO and President Glenn R. Tringali. One such board member [...]
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Invention Based on Clay Pot Could Save Newborns From Cerebral Palsy
09 April 2013
As featured in The Star: Canada by: Diana Zlomislic News reporter, Published on Sun Mar 31 2013 A simple device invented by Johns Hopkins students could, with the help of a Canadian grant, become a lifesaver in the developing world. Putting a baby inside a flower pot is generally not a good idea, no matter [...]
Posted in CP in the NewsComments (0)
Maris And The Merry Rockers – Rock Me Home [Official Video]
09 April 2013
This You Tube video was produced by CPIRF Board Member Jean-Louis Lelogeais’s daughter Marissa, who has Cerebral Palsy. Marissa is the “Maris” in the title, “Maris and the Merry Rockers,” and she can be seen singing and dancing throughout the video. According to her dad, Jean-Louis Lelogeais, “This is Marissa’s first video. She’s my hero [...]
Posted in CP in the News, Foundation News, VideoComments (0)
New Evidence on Outcomes of Selective Dorsal Rhizotomy
09 April 2013
Most treatments for cerebral palsy (CP) are initially directed toward children. What is not clearly established is the long- term effects of such treatments. Many appear helpful in the short term but prove to be disadvantageous in the long run. Selective dorsal rhizotomy (SDR) is a permanent, irreversible neurosurgical procedure for reducing spasticity in cerebral [...]
Posted in Medical Director's DeskComments (0)
One-Day Conference on CP Updates and Specialty Care Management at the Weinberg Family Cerebral Palsy Center at Columbia University
09 April 2013
Please see the following information for a one-day conference on CP Updates and Specialty Care Management at the Weinberg Family Cerebral Palsy Center at Columbia University. This Center at Columbia is a site the CPIRF is helping to fund. Join the leadership team of the Weinberg Family Cerebral Palsy Center at Columbia University and United Cerebral Palsy of NYC [...]
Posted in CP in the News, Foundation NewsComments (0)
Senators Praise Passage of Resolution Designating National Cerebral Palsy Awareness Day
22 March 2013
Thanks to our friends at Reaching for the Stars (www.reachingforthestars.org), Senate Resolution 89 has passed to once again declare March 25th as National Cerebral Palsy Awareness Day for 2013. This passed last night in the 112th Congressional session at 10:35 pm. WASHINGTON – U.S. Senators Johnny Isakson, R-Ga., and Bob Casey, D-Penn., today praised the unanimous [...]
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CPIRF Named Recipient for Family Fundraiser
04 March 2013
CPIRF is very proud to be the recipient of the “Find a Cure for Finn” fundraiser organized by the Kelly family of Rye New York. Family and friends of 8-year-old Finn Kelly will be running the Sleepy Hollow, NY, Half-Marathon starting 9:30 a.m. on March 23 to raise money to find a cure for Cerebral [...]
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Cerebral Palsy
26 February 2013
by Shanna Freeman as published 02/14/13 06:39 in Discovery Health. When you hear the words cerebral palsy (CP), you might think of someone who’s physically disabled. If you’ve ever known someone with CP, he or she may have used a cane, braces, a walker or a wheelchair to get around. But in reality, there might be more [...]
Posted in CP in the NewsComments (0)
CPIRF Medical Director & Colleagues Publish Gene Research Study
26 February 2013
Dr. James Blackman, Medical Director of CPIRF, and colleagues from the Norwegian University of Science and Technology recently published their research on the role of the Apolipoprotein E (APOE) gene in determining individual variability in response to brain injury during the fetal, newborn, and early infant stages of development. It appears that individuals with the epsilon 4 [...]
Posted in CP in the NewsComments (0)
Medical Trial Offers Michigan Families Hope
13 February 2013
By Shawn D. Lewis From The Detroit News February 11, 2013 Andrew Kijek, 11, cannot crawl, walk, talk, hold his head upright or control his muscles. He was diagnosed with spastic cerebral palsy a year after suffering oxygen deprivation during a difficult birth. “He’s already perfect,” said Maureen Kijek of Shelby Township, gently cradling her son’s [...]
Posted in CP in the NewsComments (0)
Most treatments for cerebral palsy (CP) are initially directed toward children. What is not clearly established is the long- term effects of such treatments. Many appear helpful in the short term but prove to be disadvantageous in the long run. Selective dorsal rhizotomy (SDR) is a permanent, irreversible neurosurgical procedure for reducing spasticity in cerebral palsy. Parents contemplating SDR for their child would like assurance that that there will not be harmful complications from it as the child ages into adolescence and adulthood. We now have new evidence...
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- Priorities in Cerebral Palsy Research
- New National Research Program to Evaluate Mobility Treatment
- Teens Raise Thousands For Cerebral Palsy Research
- Stem Cell Debate Finds Compromise With Use of Amniotic Fluid
- Cord Blood And Cerebral Palsy
- Sensory Therapies for Cerebral Palsy
- CPIRF Dedicates Over One Million Dollars to Seven New Research Initiatives
- Kelly Family Fundraiser Raises Over $37,000 for CPIRF
- “Shooting” for a Cure
- Board Member Is Key Contributor To Columbia Business School Case on Disability Market
- CPIRF Saddened by the passing of former Goldenson Awardee Dr. Jacquelin Perry
- CPIRF Installs Three New Board Members
- CPIRF Research Presentation Highlights
- Longtime Leaders of CPIRF Honored With Award Designations
- CPIRF SAC Chairman Co-authors New Book on Cerebral Palsy
- Teens Raise Thousands For Cerebral Palsy Research
- Benefit Honoring Paul Volcker Nets Over 3/4 of a Million Dollars for CP Research
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