Dr. Roberto Romero, Chief of the Perinatology Research Branch of the National Institute of Child Health and Development and a former member of the CPI Research Foundation Scientific Advisory Council (SAC), describes the importance of vaginal progesterone in reducing pre-term birth and neonatal complications in a recent press release from the Detroit Medical Center. For [...]
BERGDr. Diane Damiano, Chief of Functional and Applied Biomechanics Section at the NIH Clinical Center, longstanding member of the CPI Research Foundation SAC and one of our former Hausman awardees, was part of an NIH study team that tested the effectiveness of an electrical stimulator device (WalkAide) on individuals with CP that have a form [...]
BERGAlthough Dr. Citlali Lopez-Ortiz’s research study through Northwestern University’s Rehabilitation Institute of Chicago has not yet been completed, Sophia Jablonski, an eleven year old with cerebral palsy who is participating in the Joffrey Ballet’s annual production of “The Nutcracker” is certainly helping make the case for this innovative form of therapy. Dr. Lopez-Ortiz, recipient [...]
BERGThe CPI Research Foundation board of directors met on October 26, 2011 and approved research funding for four new pilot studies (see below for further description). The grants, which were peer reviewed and recommended for funding to the board of directors by the CPI Research Foundation’s Scientific Advisory Council, represent a $200,000 commitment in 2012 [...]
BERGBy gaining a better understanding of the role of altered astrocyte development and function in white matter brain injury after chronic hypoxia (HX), the study findings will help develop new cell-specific therapeutic approaches for brain injuries seen in premature infants with cerebral palsy and help to decrease neurological morbidity associated with cerebral palsy in very [...]
BERG
10 December 2010
The Pregnancy and Perinatology Branch (PPB) of the Eunice Kennedy Shriver National Institute of Child Health and Human Development is very pleased to inform that three new Funding Opportunity Announcements on Neonatal Hypoglycemia have been published. The links to each are below. These announcements were the result of 2008 workshop on the topic at PPB, and [...]
18 October 2010
The AACPDM’s 64th Annual Meeting was designed to provide targeted opportunities for dissemination of information in the basic sciences, prevention, diagnosis, treatment, and technical advances as applied to persons with cerebral palsy and developmental disorders. The program provided a forum for discussion of scientific developments and clinical advances in the care of people with these [...]
10 September 2010
John W. Kluge, former foundation president and chair of the board of directors, passed away on Tuesday, September 7 at his family home in Charlottesville , VA at the age of 95. Mr. Kluge was champion for cerebral palsy and related brain disorders research. CPIRF President James C. Stearns noted “John Kluge served CPIRF for [...]
19 August 2010
ADD funds projects of national significance (PNS) designed to foster systems change in meeting the needs of people with developmental disabilities and their families. ADD is asking people to complete a short on-line survey about the types of programs and projects that would be most helpful to people and their families. The survey can be [...]
29 July 2010
The U.S. Food and Drug Administration today approved Cuvposa (glycopyrrolate) Oral Solution to treat chronic severe drooling caused by neurologic disorders in children ages 3 years to 16 years. Drooling is normal in infants. But a significant proportion of the developmentally disabled population experiences drooling caused primarily by neuromuscular dysfunction that makes it hard to [...]
28 June 2010
July 2010 Fact Sheet Drs. Sylvie Girard and Guillaume Sébire, recently published a study in the April 2010 issue of the Journal of Immunology examining the role of maternal bacterial infection and inflammation occurring at the end of gestation. Although it is recognized as an independent risk factor for neuro-developmental disorders such as cerebral palsy, [...]
16 June 2010
A Conference for Adults with Cerebral Palsy The CP conferences bring together adults with CP as well as members of the medical profession, social workers and educators who focus on the issues confronting adults with CP. For many adults with CP, as well parents and caregivers, the conferences are the only source of information about [...]
15 June 2010
Ms. Jacqueline Carmosino has been hired as Manager of Administration for CPIRF, having joined CPIRF on June 1, 2010. Jackie has extensive experience in both the non profit and private sectors, having served in executive administrative capacities for the National Alliance for Autism Research (NAAR) and Autism Speaks, Inc. for the past 8 years after [...]
20 May 2010
May 2010 Fact Sheet Part One can be found by clicking here… Leading neuroscientists, clinicians, neurobiologists, and pediatric neurologists came together for a symposium entitled “Injury to the Preterm Brain and Cerebral Palsy” in conjunction with the 37th Annual Meeting of the Child Neurology Society on November 5th, 2008. This symposium was supported by the [...]
18 May 2010
Medical Director Mindy Aisen Chairs Successful Transformational Technology Summit CPIRF Medical Director Mindy Aisen who also serves as Chief Medical Officer at Rancho Los Amigos National Rehabilitation Center in Downey, CA, chaired the three day international Transformational Technology Summit that was held September 2-4, 2010 at Rancho. “We created this first-of-its kind Summit to promote [...]

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