By Dr. Deborah Thorpe
Sixty percent of persons with cerebral palsy (CP) in the United States are over the age of fifteen1 with life expectancies reaching those of the unaffected population but still strongly related to degree of severity. Cooper et. al. 2in a study on physical activity and health among people with disabilities found that activity level was highly correlated with years of survival in adults with CP. Several investigators 3, 4, 5, 6, 7 have concluded that there is evidence that adults with cerebral palsy might not be engaging in sufficient physical activity to produce the improvements in fitness that would be required to experience associated health benefits. van der Slot 7 measured physical activity in adults with hemiplegic CP using an Activity Monitor and found these adults participated to a similar degree as their healthy comparisons. However, more severely impaired adults with cerebral palsy (GMFCS Levels 2-5) that have severe activity limitations most likely develop secondary conditions that lead to decreased health benefits. 8 In adults with CP, Johnson et, al. 9 found total energy expenditure (TEE) to be highly variable and a significant predictor of ambulatory status in adults with CP.
A few studies 10, 11, 12, 13 have addressed progressive resistive strength training on land in adults with CP with significant improvements in muscle strength, walking velocity, and gross motor abilities. Work has begun to validate the use of water as an optional exercise medium to land in this population. 14, 15, 16, 17 Utilizing the beneficial properties of water such as buoyancy, neutral warmth, and variable resistance and eliminating the negative effects of gravity, persons with cerebral palsy can optimize their full movement potential in an aquatic environment while maintaining joint integrity.
Unnithan and colleagues 18 designed a combination of aerobic and strength interval training for 14-18 year olds with CP and found significant improvements in work economy which may have implications for increasing physical activity levels in this population. It has been only recently that therapists and researchers have looked beyond the limitations of the disease and discovered that many children and adults with CP can train at near-normal intensity levels (70-85% of maximum heart rate). 10, 11, 13, 14, 15
There is no information on the impact of exercise and fitness on health outcomes such as body fat, blood lipids, and blood pressure in adults with CP 19 and no idea if improvements in physical fitness will have similar benefits as in the general population. Future research should include identifying specific types (strengthening, aerobic, flexibility), combinations and doses of exercise and physical activity for adults with CP. Specific physiologic parameters need to be identified that will provide the most reliable and valid information in order to discern fitness need and change. In order to develop physical activity interventions based on individual needs that promote strengthening and aerobic conditioning but also maintain optimal nutritional status valid methods to determine total energy expenditure (TEE) need to be identified. Finally, comprehensive investigations of physical activity are needed to determine the relationships between physical activity, participation, HRQL and psychosocial functioning.
- Paneth, N. and Kiely, J. The frequency of cerebral palsy: a review of population studied in industrialized nations since 1950., in The Epidemiology of the Cerebral Palsies, F.S.a.E. Alberman, Editor. 1984, Blackwell Scientific Publications: Oxford, England. p. 46-56.
- Cooper, R., Cooper RA, Quatrano LA, Axelson PW, Harlan W, Stineman M, Franklin B, Krause JS, Bach J, Chambers H, Chao EY, Alexander M, and Painter P. Research on physical activity and health among people with disabilities: A consensus statement. Journal of Rehabilitation Research and Development, 1999. 36(2): p. 142-54 Review.
- Turk MA, Geremski CA, Rosenbaum PF, and Weber RJ. The health status of women with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 1997c. 78: p. S10-17.
- Turk, M., et al. Adults with cerebral palsy: Exercise and fitness in aging and cerebral palsy. 1997. Washington, DC: United Cerebral Palsy Association.
- Heller T, Ying Gs GS, Rimmer JH, and Marks BA. Determinants of Exercise in Adults with Cerebral Palsy. Public Health Nursing, 2002. 19(3): p. 223-231.
- Gaskin, C. and T. Morris, Physical Activity, Health-Related Quality of Life, and Psychosocial Functioning of Adults with Cerebral Palsy. Journal of Physical Activity and Health, 2008. 5: p. 146-157.
- van der Slot WM, Roebroeck ME, Landkroon AP, Terburg M, Berg-Emons RJ, and Stam HJ. Everyday physical activity and community participation of adults with hemiplegic cerebral palsy. Disability and Rehabilitation, 2007. 29(3): p. 179-189.
- Nieuwenhuijsen C, van der Slot WA, Beelen A, Hans Arendzen J,. Roebroeck ME,. Stam HJ, and van den Berg-Emons RJ. Inactive lifestyle in adults with bilateral spastic cerebral palsy. J Rehabil Med. 2009 Apr;41(5):375-81.
- Johnson RK, Hildreth HG, Contompasis SH, and Goran MI. Total energy expenditure in adults with cerebral palsy as assesed by doubly labeled water. Journal of American Dietietic Association, 1997. 97(9): p. 966-70.
- Horvat, M. Effects of a progressive resistance training programme on an individual with spastic cerebral palsy. American Corrective Therapy Journal, 1987. 41(1): p. 7-11.
- Holland, L. and Steadward R. Effects of resistance and flexibility training on strength, spasticity, muscle tone, nad range of motion of elite athletes with cerebral palsy. Palaestra, 1990(Summer): p. 27-31.
- Andersson C, Grooten W, Hellsten M, Kaping K, and Mattsson E. Adults with cerebral palsy: walking ability after progressive strength training. Developmental Medicine and Child Neurology, 2003. 45: p. 220-228.
- Taylor, N., Dodd K, and Larkin, H. Adults with cerebral palsy benefit from participating in a strength training programme at a community gymnasium. Disability and Rehabilitation, 2004. 26(19): p. 1128-1134.
- Thorpe, D., Enhancing function, fitness and participation in adolescents with cerebral palsy. Developmental Medicine and Child Neurology, 2007. Suppl 111(49): p. 32-33.
- Thorpe, D. and Reilly M. The effect of an aquatic resistive exercise program on lower extremity strength, energy expenditure, functional mobility, balance and self-perception in an adult with cerebral palsy: A retrospective case report. The Journal of Aquatic Therapy, 2000. 8(2): p. 18-24.
- Thorpe D, Reill M, and Case L. The Effects of an Aquatic Resistive Exercise Program on Ambulatory Children with Cerebral Palsy. Aquatic Physical Therapy, 2005;13(2): 21-34
- Ozer D, Nalbant S, Aktop A, Duman O, Kele? I, and Toraman NF. Swimming training program for children with cerebral palsy: body perceptions, problem behaviour, and competence. Perceptual Motor Skills, 2007. 105(3 pt 1): p. 777-787.
- Unnithan VB, Katsimanis G, Evangelinou C, Kosmas C, Kandrali I, and Kellis E Effect of Strength and Aerobic Training in Children with Cerebral Palsy. Medicine and Science in Sports and Exercise, 2007. 39(11): p. 1902-1909.
- Rimmer, JH. Physical fitness levels of persons with cerebral palsy. Developmental Medicine and Child Neurology, 2001. 43: p. 2008-212.


We are pleased to announce a new feature to our website that will provide information and updates from CPI Research Foundation Medical Director Dr. James A. Blackman on cerebral palsy research topics of interest. 






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